A pilot study catalogue for the Women and Children's Health Research Institute (WCHRI). The WCHRI Dataverse describes a collection of research studies conducted by WCHRI members. The purpose of the study catalogue is to help make maternal, infant and child health research more discoverable and accessible to the broader research community, better enable researchers to connect with potential collaborators, and improve research by minimizing duplication of effort by allowing others to know about and build upon existing data (if permitted).

Project Funding:

The Center for the History of Medicine (CHoM) and the University of Alberta Libraries (UAL) were awarded $367,602 in grant funding from the Council on Library and Information Resources (CLIR) for the proposal Bridging the Research Data Divide: Rethinking long-term value and access for historical and contemporary maternal, infant, and child research. Grant funding will enable the Center and UAL to create rich metadata for discovery, access, citation, and long-term preservation of maternal, infant, child, and youth health (MCH) research data. The Cataloging Hidden Special Collections and Archives program is funded by The Andrew W. Mellon Foundation and administered by CLIR.


Primary Investigators are Emily R. Novak Gustainis (formerly the late Kathryn Hammond Baker) for the Harvard collection and Sharon Farnel (University of Alberta) and Kendall Roark (Purdue University) for the UAL/WCHRI collection. Processing and metadata creation are being performed by Amber LaFountain (project archivist, CHoM/Harvard University), Amanda Harrigan (Metadata Curation Specialist, UAL) and Saurabh Vashishtha (Data Curation Assistant, UAL).

WCHRI is a partnership between the University of Alberta and Alberta Health Services, funded by the generosity of the Stollery Children's Hospital Foundation and supporters of the Lois Hole Hospital for Women.

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1 to 10 of 36 Results
Dec 4, 2016
Ross, Sue; Tang, Selphee; Schulz, Jane; Murphy, Magnus; Goncalves, Jose; Kaye, Stephen; Dederer, Lorel; Robert, Magali, 2016, "Single Incision Device (TVT Secur) Versus Retropubic Tension-free Vaginal Tape Device (TVT) for the Management of Stress Urinary Incontinence in Women: A Randomized Clinical Trial", https://doi.org/10.7939/DVN/10962, Borealis, V1
The objective of this Canadian multi-centre pragmatic randomized controlled trial was to compare the effectiveness of the new single-incision device, Gynecare TVT Secur, to the established predecate retropubic TVT device, in terms of objective cure of stress urinary incontinence...
Nov 30, 2016
Ali, Samina; Hartling, Lisa; Curtis, Sarah; Scott, Shannon; Beran, Tanya; Dow, Nadia; Rajagopal, Manasi; Graham, Timothy; Jou, Hsing, 2016, "A Randomized Controlled Trial of Children Undergoing Intravenous Placement in the Pediatric Emergency Department: Distraction to Reduce Pain and Distress", https://doi.org/10.7939/DVN/10841, Borealis, V3
This study will test if iPads are useful to help lower pain and distress for children who are visiting an emergency department and need an intravenous line put in. The results from this study could be important for many children receiving medical care, as distraction is safe and...
Nov 29, 2016
Richer, Lawrence, 2016, "Efficacy of Combination Therapy with Intravenous Ketorolac and Metoclopramide for Pediatric Migraine Therapy in the Emergency Department", https://doi.org/10.7939/DVN/10959, Borealis, V2
The purpose of this study is to investigate whether the combination of ketorolac (an anti-inflammatory pain medication) and metoclopramide (an anti-nauseant that may also relieve migraine headaches) is better than metoclopramide by itself when treating children in the Emergency D...
Nov 27, 2016
MacLean, Joanna; Hendson, Leonora; Adatia, Ian; Majaesic, Carina; Lovering, Andrew; Thompson, Richard; Nicholas, David; Thebaud, Bernard; Stickland, Michael, 2016, "Cardio-respiratory Function, School Age Abilities and Quality of Life in Extremely Low Birth Weight Infants", https://doi.org/10.7939/DVN/10954, Borealis, V1
This study examined cardio-respiratory function, school age abilities and quality of life in a large cohort of children 8 to 12 years of age born extremely preterm (EP).
Nov 20, 2016
Huang, Vivian; Fedorak, Richard; Wierstra, Kelsey; Bal, Jasmine; Smith, Kayla-Marie; Shipka, Morgan; Sutton, Reed; Manocha, Alisha, 2016, "Improving Knowledge Regarding Pregnancy and Inflammatory Bowel Disease", https://doi.org/10.7939/DVN/10904, Borealis, V2
The study objective is to assess the effectiveness of a web-based information portal to improve the knowledge and attitudes of patients with IBD with respect to maternal health and chronic disease. This study will help to develop educational tools for improving knowledge regardin...
Nov 20, 2016
Parent, Eric; Schreiber, Sanja; Hedden, Douglas; Moreau, Marc; Hill, Douglas; Lou, Edmond; Khodayari Moez, Elham; Watkins, Elise; Southon, Sarah, 2016, "A Multicenter Randomized Controlled Trial to Compare the Effect of Schroth Exercises to Standard Care on Curve Characteristics, Posture, and Quality Of Life in Adolescents With Idiopathic Scoliosis", https://doi.org/10.7939/DVN/10914, Borealis, V2
This multicentre study will be a two parallel arms assessor- and statistician-blinded randomized controlled trial comparing a six-months Schroth exercise intervention added to standard of care (experimental group) to standard of care alone (control group). Combined with standard...
Nov 20, 2016
Huang, Vivian; Elahi, Shokrollah; Madsen, Karen; Fedorak, Richard; Dieleman, Levinus; Wine, Eytan; Dunsmore, Garett, 2016, "Immunological Profiling", https://doi.org/10.7939/DVN/10903, Borealis, V2
This study aims to answer the question: why do some women flare during pregnancy, while others go into remission? It looks at changes in cytokines and the immune profile during pregnancy in women with IBD, comparing longitudinal changes by IBD disease types and disease activity,...
Nov 20, 2016
Huang, Vivian; Elahi, Shokrollah; Madsen, Karen; Fedorak, Richard; Dieleman, Levinus; Wine, Eytan; Lumb, Rowan, 2016, "Elevated Fecal Calprotectin in the Second or Third Trimester of Pregnancy Predicts Preterm Delivery in Women with IBD", https://doi.org/10.7939/DVN/10902, Borealis, V2
The objective of this study was to evaluate whether a FCP measurement in the 2nd or 3rd trimester of pregnancy in women with IBD can predict preterm delivery.
Nov 15, 2016
Mackie, Andrew; Rempel, Gwen; Kovacs, Adrienne; Kaufman, Miriam; Rankin, Kathryn; Jelen, Ahlexxi; Manlhiot, Cedric; Anthony, Samantha; Magill-Evans, Joyce; Nicholas, David; Sananes, Renee; Oechslin, Erwin; Dragieva, Dimi; Mustafa, Sonila; Williams, Elina; Schuh, Michelle; McCrindle, Brian, 2016, "The CHAPTER II Study: Congenital Heart Adolescents Participating in Transition Evaluation Research", https://doi.org/10.7939/DVN/10907, Borealis, V3
This project will determine whether a nurse-led transition intervention program is better at preparing teens with Congenital Heart Disease (CHD) to independently manage their medical care, compared to the care that is currently provided. The most important finding of this study w...
Nov 15, 2016
Mackie, Andrew; Klassen, Keltie; Schuh, Michelle; Schendel, Sheena; Morrison, Lisa; Rankin, Kathryn; Robert, Cheri; Islam, Sunjidatul, 2016, "Assessment of Discharge Process from the Pediatric Cardiology Unit", https://doi.org/10.7939/DVN/10905, Borealis, V2
Using a survey research design with a convenience sample, the investigators will evaluate discharge teaching in the Pediatric Cardiology Unit at the Stollery Children's Hospital. The survey tool will provide anonymous data from parents related to their children's hospitalization...
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